Our daughter, Zoe Karis, was diagnosed with a lethal skeletal dysplasia during a routine second trimester anatomy scan. We were given three months with Zoe after her diagnosis. She was born June 24, 2016. After her death, we learned that she suffered from Osteogenesis Imperfecta Type II. This fatal form of brittle bone disease did not allow her long bones (especially the ribcage) to grow large enough to support lung function. I found encouragement on blogs written by bereaved mothers before Zoe's birth, and I pray that others may be encouraged by Zoe's life.
I have chronicled our journey of loss, grief and hope on this blog. You can begin reading Zoe's story here: The Beginning.
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